California Statewide FASD Resources

Resources for Diagnosing FASD

See California Resources on NOFAS. Scroll down the page to the Diagnosis of FAS section.

In July, 2012, a Fetal Alcohol Spectrum Disorders (FASD) clinic operated by the California Teratogen Information Service (CTIS) opened in San Diego. It is designed to provide a multidisciplinary team approach to diagnosing and caring for children with prenatal alcohol exposure-related developmental problems. For more information, call 800-532-3749.

Mental Health Services

A person with FASD may display secondary symptoms (depression, rage, etc.) or tertiary symptoms (homelessness, inability to maintain a job, etc.). When this happens, the individual and his or her family may seek out mental health services.

In addition to government-based resources in California, the National Alliance on Mental Illness (NAMI) is a valuable user- and family-driven non-profit advocacy organization available to FASD-affected families.

NAMI is often an excellent resource to help the FASD-affected person and his or her family to address challenges caused by the day-to-day stresses of living with conditions such as depression, anxiety, bi-polar disorder, etc., which commonly occur alongside FASD. It has many chapters in Southern California.

To explore the NAMI California website and to locate the nearest community chapter, click here.

Regional Center Services

 

In California 21 regional centers help individuals with developmental disabilities and their families plan, access, and coordinate services. Regional centers contract with nonprofit and for-profit organizations ("service providers") to support individuals with developmental disabilities. Regional centers are private nonprofit organizations that arrange, fund, and monitor services provided by service provider organizations, which include centers operated by The ARC of California, among others.

The 21 regional centers help qualified people to make use of all essential public and private services to meet their special medical, dental, educational, recreational, vocational, social, and emotional needs. For locations of all California Regional Centers, see http://arcanet.org/regional-centers.html. See Southern California Regional Center Locations for locations in our area.

I got a call from the Regional Center in my county yesterday. They called to say that the psychologist changed her assessment to deny services and that my 14-year-old child is now accepted!

As you may know, this is practically a miracle for people with FASD in California.

After I got the original Notice of Denial a few weeks ago, I attended the meeting at the Regional Center to explain their decision. The team didn't question the IQ assessment I provided that showed my daughter to have an IQ in the 50-70 range. The problem was that I also turned in a report of her functioning on day-to-day living skills, and had rated her as if she is right with me, which is usually the case. Most people with FASD need an external brain and a lot of supervision, and I was doing that almost subconsciously.

The psychologist suspected that I answered the questions as if my daughter had support, not as if she had to do those things on her own. So the psychologist had me retake the test and answer as if I was laid up in bed, so I couldn't remind my daughter, bring her back to focus, or help her. This changed a lot of my answers, and this information was enough to help her to be qualified.
 
In order to be served by the Regional Center, a person who does not meet the four "specific disability" categories (epilepsy, autism, cerebral palsy, or mental retardation, and who are "significantly disabled") must have both an IQ under 70 and not be able to function well in at least three out of five areas of daily living (the so-called "5th Category").
 
My daughter doesn't LOOK intellectually impaired, and can be pretty verbal; so, she doesn't seem like she needs as much support as she really does. As parents know, for individuals with FASD, looks are very deceiving. And, if I remember right, 80% of FASD-affected persons need support as adults. This includes those who have a "normal" IQ.

I hope some of this information will help other parents whose child has FASD. I know most of the kids with FASD don't have a low enough IQ to qualify for Regional Centers in California; but for those who do, it might help to keep in mind the mistakes I made when I filled out my daughter's functional ability test. I also hope that some day, all of our children with FASD will get the support they need.

A mom in Northern California named Linda

Special Education Services

The California Department of Education Office of Special Education is responsible to provide information and resources to serve the unique needs of persons with disabilities so that each person will meet or exceed standards of achievement in academic and nonacademic skills.

California Special Education Local Planning Areas (SELPAs) are confederations established in geographical regions of California which provide for all special education service needs of children (birth to age 22) residing within the region boundaries. Each region's SELPA develops a regional plan describing how it will provide special education services to the students it serves.

SELPAs facilitate the design and delivery of quality educational programs and services for special needs students and training for parents and educators. Each SELPA collaborates with county agencies and school districts to develop and maintain environments in which special needs students can succeed.

California FASD Resources on NOFAS.org

NOFAS provides information about FASD resources for every state. They include community resources, treatment resources for FASD-affected individuals, family support groups, FASD diagnosis resources, FAS prevention programs, and other pertinent resources for information and support.

Click here for the link to California resources on NOFAS.

Bill Dubovsky Memorial FASD Lending Library

The Bill Dubovsky Memorial FASD Lending Library is a free resource located in Culver City, California. It loans a variety of materials on FASD and related issues for 2-week periods to parents, teachers, and professionals.

Vocational Rehabilitation Services

The Department of Rehabilitation (DOR) assists Californians with disabilities obtain and retain employment and maximize their ability to live independently in their communities. Vocational rehabilitation (VR) services are designed to get Californians with disabilities prepared for employment. Services can include training, education, transportation and job placement.

Working with individuals of every type and category of disability, DOR provides vocational rehabilitation services to eligible Californians.

DOR also provides technical assistance and training and funds 29 Independent Living Centers which offer information and referral services.

DOR assists adults with developmental disabilities, which is administered by Department of Developmental Services (DDS). For more information, see the DDS Work Services Program website at http://www.dds.ca.gov/WorkServices/Home.cfm.

For locations of all California DOR offices, see http://www.dor.ca.gov/dor-locations/index.asp. See Southern California Locations of the Department of Rehabilitation for DOR locations in our area.

Legal (Disability Rights) Services

California Disability Rights Center. California Disability Rights Center challenges discrimination in private business, housing, government services (including education), transportation and employment.
Disability Rights California. This organization provides direct and referral services to the vulnerable disabled, especially persons with developmental or psychiatric disabilities, or traumatic brain injuries.

Family Resource Centers

Strategies is a nationally recognized alliance of professional trainers, organizational development coaches, facilitators and support staff with offices in Southern and Northern California. Funding comes primarily from theCalifornia Department of Social Services, Office of Child Abuse Prevention(OCAP). Its Directory of Family Strengthening Organizations page helps you search for and find family support programs and family resource centers in your area of California. You can select the county you live in and click "Find".

For example, click here to search for and display family support programs and family resource centers located in Orange County, California.

To narrow your search, try the Advanced Search feature.

 

Southern California Locations of the Department of Rehabilitation

Imperial County

Imperial County has one Department of Rehabilitation office:
  • El Centro

Kern County

Kern County has Department of Rehabilitation sites in the following locations:
  • Bakersfield
  • Ridgecrest

Los Angeles County Offices

Los Angeles County has many Department of Rehabilitation sites. Geographically, they are organized as follows:

Orange County Offices

Orange County has Department of Rehabilitation sites in the following locations:

  • Anaheim
  • Laguna Hills
  • Santa Ana

Riverside County Offices

Riverside County  has Department of Rehabilitation sites in the following locations:

  • Riverside
  • Blythe
  • Palm Desert
  • Temecula

San Bernardino County Offices

San Bernardino County has Department of Rehabilitation sites in the following locations:

  • Ontario
  • San Bernardino
  • Victorville

San Diego County Offices

San Diego County has Department of Rehabilitation sites in the following locations:

  • San Diego Central
  • East County (La Mesa)
  • North County Coastal (San Marcos)
  • North County Inland (Escondido)
  • South County (Chula Vista)

San Luis Obispo County Office

San Luis Obispo County has one Department of Rehabilitation site:

  • San Luis Obispo

Santa Barbara County Offices

Santa Barbara County has Department of Rehabilitation sites in the following locations:

  • Santa Barbara
  • Santa Maria

Ventura County Offices

Ventura County has Department of Rehabilitation sites in the following locations:

  • Ventura - Oxnard
  • Thousand Oaks

Southern California Regional Center Locations

San Bernardino and Riverside Counties

Inland Regional Center

1365 South Waterman Ave. (Headquarters)
San Bernardino, CA 92408
P.O. Box 6127
San Bernardino, CA 92412-6127
909.890.3000
909.890.3001 FAX

http://inlandrc.org

Note: IRC is located in various locations throughout Riverside and San Bernardino counties. The headquarters in San Bernardino and branch office in Riverside are manned on a full-time basis, while auxiliary offices in Temecula, Victorville and Palm Desert are staffed on a part-time or by-appointment basis. Addresses of all offices are available here.


Kern County

Kern Regional Center

3200 North Sillect Avenue (Headquarters)
Bakersfield, CA 93308
661.327.8531
661.324.5060 FAX

http://kernrc.org

Note: In addition to Kern, KRC also serves Inyo and Mono counties. Click here to see a list of all locations in each county.



Santa Barbara, Ventura, and San Luis Obispo Counties

Tri-Counties Regional Center

520 East Montecito Street (Headquarters)
Santa Barbara, CA 93103
805.962.7881

http://tri-counties.org

Note: Office addresses for each county are located here.



Los Angeles County

Los Angeles County has several Regional Centers to serve its population of persons with developmental disabilities, by far the largest in California. Use the map on the Regional Center home page to view the boundaries of each of the L.A. County Regional Centers.


North Los Angeles County Regional Center

15400 Sherman Way, Suite 170
Van Nuys, CA 91406
818.778.1900
818.756.6140 FAX

http://nlacrc.org


San Gabriel/Pomona Regional Center

761 Corporate Center Drive
Pomona, CA 91768
909.620.7722
909.622.5123 FAX

http://sgprc.org


Lanterman Regional Center

3303 Wilshire Blvd.,
Ste. 700
Los Angeles, CA 90010
213.383.1300
213.383.6526 FAX

http://lanterman.org


Westside Regional Center

5901 Green Valley Cir
# 320
Culver City, CA 90230-6949
310.258.4000

http://westsiderc.org


Eastern Los Angeles Regional Center

1000 S. Fremont Ave.
Alhambra, CA 91803
P.O. Box 7916
Alhambra, CA 91802-7916
626.299.4700
626.281.1163 FAX

http://elarc.org


South Central Los Angeles Regional Center

650 West Adams Boulevard
Los Angeles, CA 90007
213.744.7000
213.744.8494 FAX

http://sclarc.org


Harbor Regional Center

21231 Hawthorne Blvd.
Torrance, CA 90503
310.540.1711
310.540.9538 FAX

http://harborrc.org


Orange County

Regional Center of Orange County

1525 N. Tustin Avenue (Headquarters)
Santa Ana, CA 92705
P.O. Box 22010
Santa Ana, CA 92702-2010
714.796.5100
714.547.4365 FAX

http://rcocdd.com

Note: The Regional Center of Orange County has four offices. Addresses are available here.


San Diego and Imperial Counties

San Diego Regional Center

4355 Ruffin Road (Headquarters)
San Diego, CA 92123
858.576.2996
858.576.2873 FAX

http://sdrc.org

Note: The San Diego Regional Center has three offices in San Diego County, and one office in Imperial County. Click here for addresses.
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